So, my son is home from the hospital and we are thrilled to resume our normal schedule. Happy he is well enough to be here. But last night, a sobbing Benjamin came into my bedroom at 12 midnight complaining of extreme itchiness. I turned on the light and lifted up his pajama top only to see new blistering lesions on his chest, back, bum and legs.
I wanted to cry. I still do.
The oncologist said we should see her first thing on Monday. If the lesions are still forming, despite the surgery to remove the mass that ultimately is the cause of it, as well as the IVIG pre-surgery, we will move quickly to step 2: drug therapy. He will get doses of rituximab via IV. It will shut down his immune system.